tag:blogger.com,1999:blog-256262842011-10-10T06:12:27.935-04:00This site is to help Maria.Ricknoreply@blogger.comBlogger491100tag:blogger.com,1999:blog-25626284.post-59350975590617008732009-01-11T22:23:00.009-05:002009-01-15T10:43:47.188-05:00

Maria and Uncle Ryan - Christmas 2006Maria and Mackenzie - January 2007Hello Everyone,It has been a while.We wish you all God’s blessings in the New Year and hope that Christmas brought joy to all of you.We went to Florida for Christmas. My brother Ryan got married! He is 14 years younger than me, and the baby of 6 kids. He was very dear to Maria. She held a very special place in her heart for

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com21tag:blogger.com,1999:blog-25626284.post-25513735021239532972008-08-24T23:27:00.002-04:002008-08-25T08:55:59.809-04:00

Dear Jesus, help me to spread Your fragrance everywhere I go. Flood my soul with Your spirit and love. Penetrate and possess my whole being so utterly that all my life may only be a radiance of Thee. Shine through me and be so in me that every soul I come in contact with may feel Thy presence in my soul. Let them look up and see no longer me but only Jesus. Stay with me and then I shall begin to

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com11tag:blogger.com,1999:blog-25626284.post-40214874396463316732008-04-13T23:32:00.001-04:002008-04-14T00:00:09.515-04:00

Hello Everyone, It has been a long time since I have written a post. Megan does a much better job than I could do if I spend 2 weeks on researching the English language. But there are some things that I want to tell you, so expect this post to be disorganized, direct and brief. First and foremost, it is more difficult than I could have ever imagined being without Maria. Every

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com23tag:blogger.com,1999:blog-25626284.post-88371136803371908422008-02-10T16:30:00.000-05:002008-02-11T13:47:57.073-05:00

Aidan, Maria and Eddie - Thanksgiving 2006Hard to believe this was but a year ago. Maria was doing so well.That tumor came back and we just couldn't stop it.We were so helpless. I ask every day--What would have stopped it? If I had only known.I would have done anything to stop it.That is why we have to fight for those now and those yet to come.Hello Everyone,I wrote the following post on

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com11tag:blogger.com,1999:blog-25626284.post-34004799436822703702008-01-11T16:22:00.001-05:002008-03-31T10:49:46.122-04:00

Happy Birthday sweet Maria,On your special day I think of you with so much love and gratitude in my heart.You came into this world so quietly. It struck me that you barely even cried when you were born. I thought something must be wrong, but then you looked at me wide-awake and so peacefully. You had that quiet peace about you right from the very beginning. Maybe because you knew I was not well

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com20tag:blogger.com,1999:blog-25626284.post-83802929121295265542007-09-24T15:07:00.000-04:002007-09-25T09:06:13.831-04:00

"Dear Jesus, help me to spread your fragrance everywhere I go.Flood my soul with your Spirit and love.Penetrate and possess my whole being so utterly,that all my life may only be a radiance of Thee."-Mother TeresaHello Everyone,In this world there are so many beautiful and wonderful people. I've heard it said that when you go through an experience like this God is closer to you than ever. This

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com22tag:blogger.com,1999:blog-25626284.post-85379619586968096442007-07-14T22:21:00.000-04:002007-07-31T09:11:10.803-04:00

Here are the services:WakeMonday July 16, 2007 -- 5 PM to 8 PMTuesday July 17, 2007 -- 2PM to 4 PM and 6PM to 8PMatChambers Funeral Home29150 Lorain RoadNorth Olmsted, OH(Corner of Stearns and Lorain -- North Side)Mass of Wednesday July 18, 2007 --10:30AMatSt. Raphael's Church525 Dover Center RoadBay Village, Ohio 44140

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com71tag:blogger.com,1999:blog-25626284.post-73438557933899083232007-07-14T08:35:00.000-04:002007-07-14T08:54:15.010-04:00

God came today and picked his little sunflower Maria.She became a Saint in Heaven at 1:30 in the morning.No words can describe the impact she has left on so many lives.Maria's brothers, Eddie, Aidan, and Blake and Mom and Dad were with her at home.Please ask God to give us the strength we need.We love you Maria. You will be with us everyday. Love Mom and Dad

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com161tag:blogger.com,1999:blog-25626284.post-28694937042898572402007-06-15T09:43:00.000-04:002007-06-16T16:22:02.705-04:00

Hello Everyone,Thank you for being patient as our updates come less frequently. Thank you for caring. Thank you for your prayers. Thank you seems never to be an adequate word, but, as we have said before, there really are no words to describe what we feel in our hearts.I want to take a moment to thank all of you who have donated to our personal fund on this site. It has helped us quite a bit with

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com26tag:blogger.com,1999:blog-25626284.post-62268188458242860202007-04-23T23:06:00.000-04:002007-04-23T23:10:58.244-04:00

Hello Everyone,Today is such a beautiful day. I hope everyone is outside enjoying it!We have posted a lot less frequently in the past months. A friend of mine said, “You need to post so we can keep those prayers coming!” I am grateful to have this site to come to and post when I feel I need to talk or have something to say. It has been very healing for me to be able to do that. I don’t ever like

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com35tag:blogger.com,1999:blog-25626284.post-76197968268458302892007-04-10T07:35:00.000-04:002007-04-10T23:40:03.900-04:00

Hello Everyone,Just a quick but important message that we wanted to get out to everyone. I had the opportunity to meet with Robert Indian of the State of Ohio Health Department. He is the one heading up the Leukemia study for Avon Lake. He has been working in the past year and a half and has gathered a lot of data in regards to Avon Lake and childhood cancer. He is going to have a report out in

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com7tag:blogger.com,1999:blog-25626284.post-33261138740932373272007-04-01T16:27:00.000-04:002007-04-01T16:51:41.393-04:00

Hello Everyone,Thank you to all of you who are checking in with us on our one-year anniversary since diagnosis. Palm Sunday. It is a special day for us and we thank God for the time He has given us with Maria. We are celebrating life today, and we hope that you do too.Maria’s attitude and the love that she shares are better and stronger than ever. She continues to draw the most beautiful pictures

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com18tag:blogger.com,1999:blog-25626284.post-62325044870057039272007-03-12T13:15:00.000-04:002007-03-12T13:22:28.731-04:00

Please join us in saying the Rosary on Friday, March 16th at 12:00 p.m at St. Raphael's Parish in Bay Village.The Rosary will be held for the healing and protection of Sophie Quayle and Maria McNamara. Maria McNamara, a first grader at St. Raphael's, and Sophie Quayle, an Avon Lake resident, both suffer from a very serious brain tumor. If you can't make it to the church then please say a rosary

Ricknoreply@blogger.com15tag:blogger.com,1999:blog-25626284.post-47318254212588960192007-03-06T09:28:00.000-05:002007-03-06T09:50:45.654-05:00

Hello Everyone,I know there are quite a few of you out there that have heard by now and, yes, the news is true. There is a beautiful little 3 ½ year old girl named Sophie who was just diagnosed with a diffuse intrinsic pontine glioma on Ash Wednesday (Feb. 21st). We knew she lived out in our neck of the woods but did not realize until Ed and her father, Marc, spoke that we live within yards of

Ricknoreply@blogger.com18tag:blogger.com,1999:blog-25626284.post-1170365681169569202007-02-01T16:34:00.000-05:002007-03-02T06:08:46.866-05:00

Update as of Thursday February 1, 2007Hello Everyone,Time just keeps flying by.Maria is still doing well. It has been 2 months since we received very bad news that our time is limited with Maria. As we told you, we were not supposed to have a great Christmas or January. Well, Maria is still dancing, singing, laughing, telling jokes and playing with her brothers, everyday. We cherish every second

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com27tag:blogger.com,1999:blog-25626284.post-1168537438164102712007-01-11T12:42:00.000-05:002007-01-30T21:53:42.853-05:00

Hello Everyone,Today is Maria’s 7th birthday and we thought the perfect day to announce the establishment of our new nonprofit organization, the Prayers From Maria Foundation (see: http://www.prayersfrommaria.org/ ).There aren’t many people who realize that pediatric gliomas are the second leading cause of cancer deaths in young people and 85-95% of these children die within the first five years

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com33tag:blogger.com,1999:blog-25626284.post-1168311224478301342007-01-08T21:50:00.000-05:002007-01-18T23:53:49.976-05:00

Hello Everyone,We want to thank all of you for being so wonderful to us. I am glad that we have a comments section on the site so each of you can witness how much kindness and love comes to our family from so many different people in so many different places. I wish I could share with all of you what I receive from people on a daily basis—kind beautiful letters, cards and phone calls, support

Ricknoreply@blogger.com29tag:blogger.com,1999:blog-25626284.post-1167579331976188202006-12-31T10:30:00.000-05:002007-01-08T20:36:00.876-05:00

Merry Christmas and a Happy New Year to everyone!It has been a month since we last posted. We have been busy. We have been spending a lot of time with our family this holiday and it has been great.We have been very fortunate that Maria has gone a month without any problems. She had a great Christmas. We have been blessed. Maria has been in great spirits throughout this holiday season.So many

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com28tag:blogger.com,1999:blog-25626284.post-1164777663578321722006-11-29T00:18:00.000-05:002006-12-30T01:29:58.676-05:00

Hello Everyone,Today was a very sad day. Maria’s tumor is no longer stable. It has grown and Maria is now considered in relapse. We hesitate to tell everyone because we don’t want anyone to give up hope or to stop praying. We have not given up hope and we never will…no matter what. This has been and will continue to be in God’s hands.Currently Maria is happy. She is full of life and is

Ricknoreply@blogger.com119tag:blogger.com,1999:blog-25626284.post-1164127012094056992006-11-21T11:31:00.000-05:002006-12-20T20:28:33.136-05:00

At first glance you’d think Ed and I don’t really have much to be thankful for this year. But actually, knowing that our circumstances weren’t His will, you can then see just how much Ed and I have to be thankful for. This year at this very important time we thank God for blessing us with the most wonderful children, family and friends. In our time of greatest need Ed and I can clearly see how

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com14tag:blogger.com,1999:blog-25626284.post-1163434809471837132006-11-13T11:14:00.000-05:002007-03-04T17:19:01.283-05:00

Hello Everyone,Again time goes by too quickly. Everyday I think about what it could be like for Maria to have a life without cancer. What is the trick to getting by everyday? Everyday I wake up and ask God to help me get through just one more day.Megan always tells me that we need to always believe, without any thoughts or reservations, because if we, her parents, don’t believe for Maria then who

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com12tag:blogger.com,1999:blog-25626284.post-1161008274491471012006-10-16T10:12:00.000-04:002007-01-12T19:38:41.143-05:00

Hello Everyone,Thank you for being patient. We have been traveling quite a bit. We will try to keep you updated more frequently going forward. We know how many of you are concerned about Maria and pray for her each day and for that we are so grateful.After our last trip to St. Jude’s I had a very difficult time. Everything seemed to collide at once and I lost my footing. For the first time we met

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com29tag:blogger.com,1999:blog-25626284.post-1157755453952360282006-09-08T18:35:00.000-04:002007-01-10T22:13:32.333-05:00

Hello Everyone,We are back from Memphis! Maria, Mom, Dad and little Blake all went while Eddie and Aidan stayed back to hold down the fort. Maria was great. Everyone was so happy to see her. We got the MRI and it shows that the tumor has not grown and that it is stable. That is great news. We would have like to have seen it disappear, but stable is the next best thing. Our next scan is scheduled

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com31tag:blogger.com,1999:blog-25626284.post-1156873611710131252006-08-29T13:45:00.000-04:002007-01-07T01:19:52.526-05:00

Hello Everyone,Where is the time going? Our trip to Hilton Head is over, school has begun and our trip to St. Jude is right around the corner. Anxiety builds as you keep trying to shake it off. Where did summer go?Our trip to Hilton Head was so precious. It went too fast. Nothing to do was staring us in the face and time with our children was all we had. It had its moments of craziness, but that’

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com11tag:blogger.com,1999:blog-25626284.post-1156786642162704692006-08-28T13:36:00.000-04:002006-11-29T19:28:36.796-05:00

Are you willing to give an hour of your time to spend in Adoration of Our Lord to pray for Maria? St. Raphael’s parish holds weekly adoration on Friday’s from 10:00 am until Saturday at 8:00am in the side chapel. On Friday, September 1st, we would like to have every hour of adoration filled with at least one person to pray for Maria. This day is significant as Maria’s next MRI will be the

Ricknoreply@blogger.com1tag:blogger.com,1999:blog-25626284.post-1154973911973250862006-08-07T13:56:00.000-04:002006-08-14T19:04:10.960-04:00

You’re invited to an Open House to benefit Maria McNamara and St. Jude Children’s Research Hospital!When: Thursday, August 10thTime: 3-5 PM and 7-9 PMWhere: Betsy Kaiser’s HomeAddress: 1463 Fitzroy Street, Westlake(In Victoria Estates off of Columbia b/w Detroit & Hilliard)Children welcome!RSVP ASAP at (440) 892-7655 or betsyk@mac.com Get a step ahead on your shopping needs FEATURING:Sheila

Ricknoreply@blogger.com2tag:blogger.com,1999:blog-25626284.post-1154664492512527322006-08-04T00:03:00.000-04:002006-08-21T11:12:58.576-04:00

Hello Everyone,We decided we would like to share the video from Maria's Benefit with all of you. Ted Gordon put the video together and did such a wonderful job. Thanks Ted.We would also like to thank everyone who worked on and participated in the 5k and Fun Run. Linda Sheehan, you are such a beautiful person and your work on this is so very appreciated. The event had a turnout of 462 people!

Ricknoreply@blogger.com10tag:blogger.com,1999:blog-25626284.post-1154046900568201192006-07-27T20:33:00.000-04:002006-07-30T08:56:46.446-04:00

It's not too late to go! There will be onsite registration for last minute entries - make your plans now. The specifics of the event are as follows:Date: Saturday, July 29, 2006 Time: 8:00 AM Place: Bay Presbyterian Church, Great Hall, 25415 Lake Road, Bay Village, OH 44140 Map: Click hereCost: 5K run - $20, 1 mile walk - $15Registration form: Click here

Ricknoreply@blogger.com2tag:blogger.com,1999:blog-25626284.post-1153799623510465822006-07-24T23:51:00.000-04:002006-08-20T04:35:04.823-04:00

Hello Everyone,Maria drew me a beautiful picture today. She draws me beautiful pictures every day. It’s funny how much more I cherish her artwork than ever before. I always loved to get pictures from her, but now I take the time to appreciate them more. Why didn’t I before? She draws such beautiful pictures of her and me doing all sorts of things together…riding on our bikes, playing in the snow,

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com18tag:blogger.com,1999:blog-25626284.post-1152884887612147772006-07-14T09:36:00.000-04:002006-09-07T10:14:10.703-04:00

Hello everyone,We have gotten a few questions since we last posted the MRI images so we wanted to take a few moments to help answer them.Everyone has been very excited about the news that the tumor has shrunk. Here is some more information we have learned. Most children respond to radiation treatment where the tumor does shrink. This is actually normal. The amount of shrinkage does vary by each

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com12tag:blogger.com,1999:blog-25626284.post-1152125876002890522006-07-05T14:57:00.000-04:002006-07-13T22:56:31.110-04:00

Channel 3 News (WKYC) in Cleveland is running a series of pieces on Maria. The original concept was to run a single news story about her but since there was so much interest following the initial piece, they've decided to run additional ones. Here is the schedule:July 5, 2006 - 11 PM original story (video is here)July 6, 2006 - 7PM first follow-on story (video is here)July 6, 2006 - 11PM second

Ricknoreply@blogger.com18tag:blogger.com,1999:blog-25626284.post-1151766036395863152006-07-01T10:26:00.000-04:002006-08-11T11:17:15.923-04:00

Hello Everyone,First, we’d like to thank each one of you for always remembering Maria and for your unceasing prayers. It is because of your faith, hope and love, and in such great numbers, that we are deeply encouraged and blessed.It is with GREAT caution but increased hope that we write to you today. Our trip to St. Jude proved to be very inspiring for us.After viewing Maria’s MRI scans

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com35tag:blogger.com,1999:blog-25626284.post-1151519269614962712006-06-28T13:56:00.000-04:002006-07-05T17:42:29.280-04:00

Hello Everyone,Today we leave for St. Jude. As most of you probably know, Maria needs to go back to St. Jude on a regular basis. Tomorrow we are getting an MRI done. We aren't expecting any great news since the tumor is expected to not shrink and maybe even grow a little, but we are hopeful.Maria has been playing like a regular kid. She goes swimming with her friends; she runs in the yard, she

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com12tag:blogger.com,1999:blog-25626284.post-1150773680965738162006-06-19T23:20:00.000-04:002006-06-25T20:35:56.260-04:00

Hello Everyone,A lot has happened since the last post. Where to begin?Well, as most of you have seen from Rick's post, the wine tasting event was unbelievable! It was very impressive. Thank you everyone for being a part of it. Thanks for your support and generosity. And thank you for your continued prayers. We hope everyone had a lot of fun.And what a well done video. Thanks Ted.Now on to the

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com10tag:blogger.com,1999:blog-25626284.post-1150569984532118472006-06-17T14:42:00.000-04:002006-07-11T12:42:59.513-04:00

I wanted to take a moment to thank everyone who donated items and attended last Friday’s event - it wildly exceeded our expectations. I was overwhelmed by the love and generosity of the community – it was truly amazing!I’d like to mention a few people and companies who really stepped up and helped us out with various items: The Irish Heritage Club (www.irishheritageclub.com) for providing the

Ricknoreply@blogger.com2tag:blogger.com,1999:blog-25626284.post-1149532693193829862006-06-05T14:37:00.000-04:002006-06-15T22:56:15.033-04:00

Hello Everyone,We are back in Cleveland now. It is great to be back. When we pulled in the driveway and got out of the car, the boys, of course, took off running. Eddie was already on the tricycle and heading over to our neighbor’s house. Our neighbors immediately came over to welcome us home. I can’t say enough about how much they mean to us. I was feeling a little bittersweet about

Ricknoreply@blogger.com21tag:blogger.com,1999:blog-25626284.post-1149520402038345962006-06-05T11:11:00.000-04:002006-06-19T21:23:51.580-04:00

Another beautiful example of love from our community is the YPF from Bay High School. Thank you so much to Jim Cahoon and Bay High’s YPF students and all who attended their event. These kids really make a difference with their hearts and their hard work.Thank you to all of you who have given donations to Prayers for Maria. Early on in treatment we spoke with Maria’s oncologist, who is closely

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com3tag:blogger.com,1999:blog-25626284.post-1149049869147945382006-05-30T23:58:00.000-04:002006-06-04T10:36:14.420-04:00

Hello Everyone,We wanted to take this time to tell you about what Bay Village High School is doing.Jim Cahoon is the principal of Bay High School and he contacted us a few weeks ago and told us about the Bay High School Youth Philanthropy Fellowship.These young adults are a selfless group of individuals who enjoy raising money to make a difference in someone's life. They exist to raise awareness

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com1tag:blogger.com,1999:blog-25626284.post-1148703594909191132006-05-27T00:19:00.000-04:002006-06-03T00:26:49.026-04:00

Hello Everyone,Today was the 3rd last radiation treatment for Maria. Tuesday and Wednesday will be the last two. I am sure that we don't have to tell you how excited everyone is to be going home. We will never forget Memphis, TN for the rest of our lives. Maria will now need to return monthly for scans and doctor visits.We wanted to take this time to tell you about all the special people that we

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com10tag:blogger.com,1999:blog-25626284.post-1148502085832909822006-05-24T16:21:00.000-04:002006-06-09T23:38:05.656-04:00

Mark your calendars for a fundraiser, the Wine Tasting and Silent Auction for Maria!What: Wine Tasting and Silent Auction sponsored by Friends of MariaWhen: June 9th, 2006 from 7:00PM to 11:00PMWhere: The Irish Heritage Club726 Avon Belden Road (Route 83)Avon Lake, OhioMap: Click hereDress: Cocktail attireAdmission: $50 per person (please RSVP before June 1st)Make checks out to "Prayers for Maria

Ricknoreply@blogger.com1tag:blogger.com,1999:blog-25626284.post-1147890672699849312006-05-17T14:27:00.000-04:002006-05-27T09:22:52.083-04:00

Hello Everyone,Yesterday was Tuesday, and Tuesdays are doctor days.So, let’s get right to the most important thing in the world, MARIA.Maria received her 20th treatment yesterday and has only 10 left. She is doing well. Her white blood cells have gone up slightly and her platelets are steady at about 350,000 (which I am told is very good). She is starting to lose a little bit of hair. This is not

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com18tag:blogger.com,1999:blog-25626284.post-1147577378940032862006-05-13T23:06:00.000-04:002006-05-18T22:20:29.510-04:00

Hello Everyone,Today was a good day. Maria didn't have treatment and didn't have any tubes sticking out of her. She was happy all day. It was about 88 degrees here and Maria went swimming! This was something that Maria was unable to do since we arrived. She loved it! Maria, the boys and dad all played in the pool while mom and Blake watched with smiles.I will say this, THE WATER WAS COLD!.This

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com12tag:blogger.com,1999:blog-25626284.post-1146804719993919242006-05-05T00:49:00.000-04:002006-05-14T20:01:08.200-04:00

Hello Everyone,It’s Maria’s third week at St. Jude’s. The boys and I came down a week ago Saturday. The first week was a little rough but we are starting to adjust better this week. We are so thankful to have a nice place to stay where we can all be a family. The people here at St. Francis of Assisi parish are so kind. Thanks to my friend’s aunt, we have really been treated so wonderfully. We are

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com27tag:blogger.com,1999:blog-25626284.post-1146371833749804472006-04-29T22:55:00.000-04:002006-05-31T20:43:58.103-04:00

Hello Everyone,Isn't it amazing the response that we are getting at this site. All over the world people are reading and praying for our daughter. Thank you so much.Today, we thought we would answer some questions about what goes on at St. Jude. What is it like? How are the people? What does Maria do every day?First of all, St. Jude is located in a neighborhood that is very close to downtown, so

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com13tag:blogger.com,1999:blog-25626284.post-1145936552447991742006-04-24T23:41:00.000-04:002006-05-02T00:57:53.890-04:00

Hello Everyone,Sorry for the delay. We have moved again and will not have access to the internet until late Wednesday.As some of you may know, our family is now together. Megan and the boys did not come down until this past Saturday. It was very difficult to find a place to live. All of the housing at St. Jude would not allow more than 4 people in it.We looked all over for a furnished home to

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com21tag:blogger.com,1999:blog-25626284.post-1145415762559099572006-04-18T20:32:00.000-04:002006-04-28T22:39:05.183-04:00

Hello everyone,It has been almost a week since we were able to post from the battle field. Maria and dad, as most of you know, are at St. Jude Children’s Research Hospital in Memphis, Tenessee. What most of you don't know is how we ended up here. So here comes the long story for those that want to know.We spent over week researching about 30 different studies. A few of them were:Topotecan and

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com32tag:blogger.com,1999:blog-25626284.post-1145042475296111862006-04-14T15:16:00.000-04:002006-05-21T19:56:18.676-04:00

Hello Everyone,Today is Good Friday. As I write this to you Maria is having an MRI done at St. Jude’s in Memphis, Tennessee. This is where we have decided to take Maria for her treatment. Maria is there with her Dad right now and the boys and I are anxiously awaiting their arrival home this evening. We are not complete without them.Ed and Maria will have to return to St. Jude’s on Easter Sunday

Ricknoreply@blogger.com19tag:blogger.com,1999:blog-25626284.post-1144812802353989462006-04-11T22:13:00.000-04:002006-05-09T17:04:19.593-04:00

Hello Everyone,First of all, we want to thank everyone for all the prayers and support. We can not tell you how many phone calls, emails, meals, gifts, and most importantly, PRAYERS that we have received.Thank you everyone. Just the support from our friends, community, St. Raphael's, neighbors and family in and of itself is a true miracle. THANK YOU, THANK YOU, THANK YOU!!We are truly counting on

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com13tag:blogger.com,1999:blog-25626284.post-1144466632403300692006-04-07T23:06:00.000-04:002006-05-10T23:15:03.113-04:00

Hello everyone,Thank you for coming to Maria's blog site. We will try as hard as we can to give you a lot of information on what is going on.Maria was diagnosed on Saturday 4-1-2006 with a Diffused Intrinsic Pontine Glioma by the Cleveland Clinic. Since this is a rare tumor, we have had to call every major hospital in the country. As of tonight, we still do not have enough information to make

Eddy Xhttp://www.blogger.com/profile/10827598079791285124noreply@blogger.com47