Today was a very sad day. Maria’s tumor is no longer stable. It has grown and Maria is now considered in relapse. We hesitate to tell everyone because we don’t want anyone to give up hope or to stop praying. We have not given up hope and we never will…no matter what. This has been and will continue to be in God’s hands.
Currently Maria is happy. She is full of life and is feeling great. Her blood counts were actually quite good and she has not lost any motor skills of any type. Dr. Gajjar tells us that he expects she will start to show symptoms in the next few weeks and that she will not be with us much longer. He is predicting two to three more months.
We will say this. The more time we spend at St. Jude and the more we get to know the people here, the more we know Maria is in the best possible place in the world. We received strong words today and we look to God now, more than ever, to guide us.
It is much too early to tell you what our next steps will be. We don’t know. We will need some time to find out all the current relapse treatments available and then weigh the odds of what is best for Maria. This is not about what we want to do or what we might do; it is about making sure that we continue to give Maria the best quality of life possible.
Whether we have 2 months or 60 years, we live every day loving our daughter and thanking God for blessing us with our little Sunflower.
Ed and Megan