Thursday, February 01, 2007

Update as of Thursday February 1 2007


Update as of Thursday February 1, 2007


Hello Everyone,


Time just keeps flying by.

Maria is still doing well. It has been 2 months since we received very bad news that our time is limited with Maria. As we told you, we were not supposed to have a great Christmas or January. Well, Maria is still dancing, singing, laughing, telling jokes and playing with her brothers, everyday. We cherish every second of it and we thank God for it. Thank you for your continued prayers.

I don’t know if it is her age, or her life experiences, but Maria is a comedian. She tells more jokes than I do at a bad alcohol induced Christmas party, AND she is funny! Just yesterday, she interviewed her best friend at the bus stop because it was the first time Morgan was at the bus stop before any of her sisters. Megan kept saying I can't believe Morgan made it to the stop first today. Well, Maria wanted more information and used her reporting skills. So, like a good reporter (or comic) Maria asked the tough question with her thumb microphone in hand, “So, how does it feel Morgan?” No comment from the bus stop star.

Maria is the best little 7 year old girl in the world. This picture is Maria in the Nine West store with mommy trying on hats. She did not buy this one, but I wanted her to.

Quick story time. Last week, Maria and her brothers made mommy and daddy breakfast. It was soooo cute. We closed our eyes and were guided into the kitchen for the great surprise of homemade, gourmet, Cheerios! With milk! We ate like royalty and Daddy had to clean up afterwards. I don’t know how I got that job, but it was worth it.

On a more serious note...Today we ask for your prayers for a very nice family who just lost their beautiful little girl, Kate, (January 27, 2007) to this horrible tumor. If you remember one of our previous posts, Kate is the only other child we have actually met in person with Maria’s diagnosis. We met her and her mother Colleen at St. Jude. Please pray for sweet Kate, her Mom and Dad and twin brother Erik.


Just_before posting today, we learned about another child we lost. John J Lipski (January 31, 2007) JJ’s family has been a great resource for us in following many other children and their progress. They have also been a pillar of strength, love and prayer. Please pray for JJ and his family.


Foundation update –

Thank you to everyone for supporting our new foundation! The response has been incredible and we are very excited about the future. We are so grateful to the numbers of you that are willing to donate your time and talents. We will be contacting all the volunteers accordingly.

We have added a “wish list” of some top items that we are looking for. Check out our GetInvolved link to see how you may be able to help.


Thanks to all of you for your continued support and love.

God Bless,
Ed and Megan

27 comments:

L Duban said...

We continue to pray for you each and every day. Maria is truly a miracle, both to you and your whole family, and to all of us who only know her because of this wretched tumour. May God continue to Bless your family and keep Maria in His care.

Anonymous said...

God Bless Maria -- she defintely has a purpose here! The courage she shows on a daily basis is got to be incredible! She is always smiling! Will continue to pray and hope that she is the first to overcome this horrible creature.

Anonymous said...

I was comforted and pleased to learn that Maria is still doing well. And thank you, for the update. We will be praying for you and the families you mentioned.

Love,
Aunt Pam

Anonymous said...

Thank you for the update. I check your site just about every day and pray for Maria and your family daily. I was so happy to read that she is still doing so well! May God continue to bless you all.

Anonymous said...

Maria is still in my thoughts and prayers everyday. Don't ever give up hope. I pray God gives your family the strength to remain strong. You are blessed with an angel.
Jean, Avon Lake

Anonymous said...

Hey Maria!

Good for you to be enjoying 1st grade so much, and for having so much fun with your Mommy and Daddy and brothers! Love Nora, Tom, Brynna, and Fiona

Anonymous said...

The prayers continue and I'm counting on Maria to make liars out of her doctors for a long time!

Love to Maria and may God Bless her always!

Anonymous said...

Dear Maria and Family-

I check your site every day and just wanted to know that you are all in my prayers. Maria- never, ever give up hope! Miracles happen- when you believe!

~Beth, Cleveland OH

Anonymous said...

My daughter Anne-Sophie had radiation and Temodar in june-july 2006. She had a 50% shrinkage and is stable since. I read that USA import Nimotuzumab from Cuba, efficient in Germany when tumor grows again with 7 months stabilisation in the study.
Good luck. I pray for our daughters and other chidren.
Laur, France

Anonymous said...

Every Tuesday I say the St. Anthony novena and include Maria. Love and prayers. Maureen Bihn Westlake

caroline pallotta said...

To the brothers of Sweet Maria:

Your sister loves you SO much. She will never not be there for you. You can trust her with anything. She may seem so 'uncool' and you may get mad at her sometimes, but you always have to love her and she will always love you. you may not know this, but your sister might not be feeling very well all of the time. It is up to you to cheer her up when she is sad. Your sister will be there when you get married one way or another. She'll be there when she becomes an aunt and you are holding your little baby whether she is standing right next to you or watching you from above thinking of how proud she is of you. Don't be afraid to lose her because you never will.

Anonymous said...

Dear Maria,
Just stopping by to let you know that I am thinking about you. Have a Happy Valentines Day!
Sherry Allen-Princeton IL

Anonymous said...

Dear Maria and Family,
This is the first time I left a messsage but I check on you often. I continue to pray daily for you. Have a Happy Valentines Day!
Sherry Allen-Princeton IL

Anonymous said...

Maria is absolutely beautiful. I pray for her and your family every night and you are always in my thoughts. Your strong and unwavering faith in God during this time is so astounding to me, you are incredibly amazing and inspiring. You will never know how much you have helped so many others in what should be your time of need. Keep strong in your faith and know that so many people out there love you, your daughter and your family. My prayers and thoughts will always be with you.
Shannon Beers, Mentor

Anonymous said...

I don't know if I believe in the power of prayer, but I want to. I have never seen a miracle, I have never received any wish I've sent up into the sky, but I want to now-- because the wishes aren't for me anymore. They are for beautiful Maria. If there is a plan, I hope it is good. I will pray that it is good.

Kim Campbell said...

To Maria's family,

I have been reading the updates and continuing to pray for Maria. What a true blessing she seems to be.

I have a niece who has been diagnosed with Ewings Sarcoma cancer back in 2004 and it just relapsed here in January. She has been back for Chemo and Radiation at Rainbows. My sister and family are much like yours, praying for a miracle and putting their faith in God. Amber is her name and she is 12 years old. She has 2 siblings Brittany 9 and Nick 6.

We are just starting down the fund raiser path as she will try and get into some clinicals and trials where some expenses will be covered. I would love any advise you could lend.

My name is Kim and my email is kjcampbell13@cox.net.

We will continue to keep Maria in our prayer and prayer that someday there is a cure for Cancer in our children.

Thank you!
Kim

Anonymous said...

just letting you know that I keep Maria and your family in my prayers every day. What a beautiful angel you have living with you!!!Melissa from St. Raphael

Beth said...

I hope things are going well for all of you, certainly the foundation is keeping you busy and it is a beautiful thing you have done to start it. Maria is in our prayers!

szinkers@bellsouth.net said...

Ed & Megan, Maria and boys,
Thinking of you all today....and everyday....and we continue to pray for Maria's miracle.
We are jealous of all the snow you've had in Ohio this year. We never even got a dusting this year.
We are always anxious for your updates.....and of course more photos of your beautiful children.
Lots of love and blessings to your family.
Dave, Faith, Elizabeth, Henry and George Szink

Leiann Neubauer said...

Just came across Maria's blog and wanted to leave a note. My son, James, also has a glioma - optic glioma. He just had his next MRI and the tumor looks even smaller. We are hopeful for him and the other children that have gliomas.

Prayerfully,

Leiann Neubauer
James' Mom
www.caringbridge.org/in/james

Anonymous said...

Psalm 100

All Men Exhorted to Praise God.

A Psalm for Thanksgiving.

Shout joyfully to the LORD, all the earth.
Serve the LORD with gladness;
Come before Him with joyful singing.
Know that the LORD Himself is God;
It is He who has made us, and not we ourselves;
We are His people and the sheep of His pasture.
Enter His gates with thanksgiving
And His courts with praise
Give thanks to Him, bless His name.
For the LORD is good;
His lovingkindness is everlasting
And His faithfulness to all generations.

Thankful that God provides and that Maria is happy.

love and prayers,
Betsy

Anonymous said...

Maria has touched me and gave me a different out look on life. For a little girl to go through so much and to just look on the birght side is amazing. She is an inspiration to me and to many people i know. I will continue to keep Maria in my prayers and may God bless her and her family and everyoneone else suffering from this disease and other cancers

Chris,Mentor

Anonymous said...

Maria is a wonderful little girl. For all that she is going through to look on the brightside and just live life to the fullest everyday is amazing to me. She is an inspiration to me and many others that I know. I will continue praying for her, herfamily, and everyone else suffering from this disease and others illnesses. God bless you all.

Chris, Mentor

Anonymous said...

How is maria now- I have been praying for her and it has been a while since you've updated. I have a friend from montgomery who's child is being treated for the same thing-- and I am a fellow catholic who has been touched by maria, as I have an 8 year old daughter at a catholic school, as you maria seems to be too, in her uniform... can you send me a quick note to let me know- am praying the rosary and to st. perigren and to all our catholic resources... love, teresa in montgomery al, mom of 5- I hope all is well and maria is doing well. lots of prayers for your family. tallen1027@charter.net

susan turner said...

I am Sophie's Grandma Turner. I am praying for Maria and want to say thank you from the bottom of my heart for your help and support.

Anonymous said...

maria i am praying for u!!!!!!!!! <3 <3 <3 <3

Anonymous said...

I've been praying for Maria every day with every intention of her getting better